The National Association of Volunteers Cornelia De Lange ONLUS

• The Association Cornelia De Lange was founded in Pesaro in 1997
• Since 2001 it is Member of the World Federation of Cornelia De Lange Associations
• The Association takes part in the National Conference for Rare Pathologies organized by the Minister for Public Health and is listed in the associations partecipating to Telethon.

Some figures

• 150 families of people suffering from CDL syndrome joining the association
• about 500 people operating with different professional expertise who work with us and take advantage of our services.
• 385 supporters (relatives, friends, public and private organizations, schools...) who constantly give us their help.

The Association aims to

• protect the people affected by CDLS, spreading the diffusion of the existing knowledge about it
• inform people of the existence of the syndrome
• support the training of specialised staff in the field of reasearch, care, education, medical assistence and rehabilitation.